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Rock ‘n Roll Musician Recovers From NPH April 9, 2014

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Famous session musician Dick Wagner thought he was suffering from an incurable neurological disease until a second opinion revealed that he in fact had Normal Pressure Hydrocephalus (NPH), which is treatable.

The NPH specialists at the Barrow Neurological Institute quickly diagnosed Dick, and provided him with an implantable device to relive his symptoms.

In this video, he talks about what it is like to be diagnosed with NPH and his experience working with Dr. Joseph Zabramski to formulate a treatment plan to return him to health. Dick is now living symptom free and continuing his life as a rock ‘n roll musician.

Dick Wagner Recovers from NPH with the Help of “Dr. Z”

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Normal Pressure Hydrocephalus Center

Margaret.bobrowitz@dignityhealth.org

 

What is a CINE MRI Study? March 17, 2014

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Many patients wonder why our NPH specialists order an MRI CINE study even when they have just completed a basic brain MRI study. Why is this necessary?

MRI CINE, otherwise known as a CSF Flow Study, is an MRI of the brain or spine that evaluates the flow of cerebrospinal fluid around the brain, brainstem and/or spinal cord. This analysis is crucial to identify a case of normal pressure hydrocephalus.

Not all radiology facilities are equipped with the software to perform these studies, so it is important to identify facilities close to your home which do offer this technology. Barrow Neurological Institute is equipped for this study as well as other complex diagnostic tests.

For more information about this procedure contact me at this blog or directly through my e-mail address noted below.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center
Margaret.bobrowitz@dignityhealth.org

The 5th Annual Phoenix Hydrocephalus Association WALK February 19, 2014

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Please join us for the 5th Annual Hydrocephalus Association Walk in the fall. The date and location will be posted on this blog once it is confirmed. Details about registration and the event itself are coming soon.

If you would like to volunteer the day of the event or in the planning stage please contact me or the Hydrocephalus Association directly @ http://hydroassoc.org/docs/2013WALK/HA_WALK_FAQ.pdf

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center

It’s Good for the Heart February 12, 2014

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It’s Heart Failure Awareness Week–a time to remind everyone of the importance of taking good care of your heart. This advice is especially sage for patients with existing medical conditions such as NPH.

As we age our body works harder to maintain good health and prevent medical disorders. Learn what measures you can take to prevent heart failure and maintain good health. Understanding your prescribed medications and their side effects is crucial to living a long, healthy life.

Approximately 60 percent of heart failure patients are readmitted to a hospital because they do not take their medications as prescribed. Proper patient and caregiver education can help prevent early readmission by up to 25 percent. Learn more by visiting the American Association @ http://www.heart.org/HEARTORG/

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org
Office: (602) 406-7585

What Research is Being Done? February 3, 2014

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The National Institute of Neurological Disorders and Stroke (NINDS) and other institutes of the National Institutes of Health (NIH) conduct research related to hydrocephalus and support additional research through grants to major medical research institutions across the country. Much of this research focuses on finding better ways to prevent, treat, and ultimately cure disorders such as hydrocephalus. The NINDS also conducts and supports a wide range of studies that explore the complex mechanisms of normal and abnormal brain development.

The Hydrocephalus Clinical Research Network (HCRN, www.hcrn.org) is a multi-center collaborative research effort that was borne out of the first NIH workshop on hydrocephalus. NINDS supported the work of HCRN through the Challenge Grant process to advance their studies. HCRN consists of seven pediatric centers that pool their hydrocephalus patient population to more rapidly study the potential for improved treatments. HCRN conducts multiple, simultaneous studies at all of its centers and maintains a substantial registry of patients and procedures.

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke or to find out how you can help, contact the Institute’s Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD   20814
info@hydroassoc.org
http://www.hydroassoc.org
Tel: 301-202-3811

888-598-3789
Fax: 301-202-3813

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Hello Human Kindness January 15, 2014

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Sometimes, good health care goes beyond making sure you feel better when you leave the hospital.  Please click on the link below to watch videos that touch upon one or more of the humankindness tenants: listening, empathy, respect, and kindness.

Hellohumankindness.org 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

We’d Like to Hear from You! December 18, 2013

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Continuing education and support for individuals affected by Normal Pressure Hydrocephalus (NPH) are highly valued here at Barrow Neurological Institute, and we offer support group meetings several times per year. We would like to hear from you about topics you’d like to learn about from the Barrow experts.

We are currently preparing for another educational support group meeting in early February 2014.  Previous talks included surgical procedures, tips for memory difficulties, nutrition & healthy living. What other topics concern you in regards to your or your family member’s NPH diagnosis? We’d love to hear from you.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Easy Exercises to Improve Stability and Prevent Falls November 4, 2013

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Balance difficulties are a common problem for those suffering from NPH. Although you may have noticed improvement in your gait and balance after surgery, some people continue to struggle.

This is a useful source of techniques to help improve stability and prevent falls.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Keep Up the Fight October 30, 2013

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The University of Arizona Cancer Center at St. Joseph’s is hosting another enrollment for the Cancer Prevention Study 3 on Tuesday, Oct. 29.

Men and women between the ages of 30 and 65 years who have no personal history of cancer are invited and encouraged to join this historic study, which will help researchers better understand the lifestyle, behavioral, environmental and genetic factors that can cause or prevent cancer.

To schedule an appointment to participate or learn more about the study, please visit www.cps3phoenix.org.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Learn about Disability Etiquette October 9, 2013

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We have all been there: not knowing how much assistance to offer the person next to you who is confined to a wheelchair. Is this person struggling? Should I help them? Will they be offended if I do? How much independence do they want?

Join us next Wednesday for an opportunity to learn the proper way to interact with individuals with disabilities. Click here for more details.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

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