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Hydrocephalus Association Walk October 4, 2014 ** Details** August 30, 2014

Posted by mvarlan in Uncategorized.
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Hello everyone,

Our 2014 walk is approaching quickly and we are looking for more volunteers.

Click here to view Pre-Event Day Volunteer Opportunities.

Click here to view opportunities for sponsors.

No task is too small to make a difference.

 Please see message from lead event facilitator below.

 We are only a few days away from HYDROCEPHALUS AWARENESS MONTH!!!!

  1.  We are looking specifically for Mesa, Gilbert, Chandler, Scottsdale and/or Tempe residents to share their hydrocephalus stories and be featured in local media! Email Mindy at mindywein@cox.netto be highlighted! 
  2. Raise money for you and your team with a percentage day fundraiser! All you have to do is just tell us the day and restaurant (Applebees, Manuel’s, California Pizza Kitchen, Oregano’s, Rubio’s, Chipotle, Pei Wei, Chompie’s, etc- your choice!) where you want to host your event. We’ll do ALL of the organizing/ planning!Just show up and dine with ALL ofyour family and friends and the amount raised will be credited towards you and your team!!!! The more patrons you bring to your percentage night, the more money you will raise! Can you say VIP access and more incentive prizes?! Let’s see which team can raise the most money and awareness in September!!!!!
  3.  September is a great time to remind your family and friends about your personal reason to walk. It’s not too late to use an email/letter writing campaign to inform your family and friends that you are supporting the cause! Please let us know if you are interested in doing so and we will provide you with all of the support and resources you need to make this a success for you and/or your team! We encourage all teams to try a letter writing campaign in addition to posting their personal page links on social media.
  4. We are taking song requests for DJ AVL! Please send us your favorite songs you would like to hear while you are walking/socializing so we can be sure to have them available to play at the WALK. Please remember family friendly songs only. 

 Finally, THANK YOU ALL for your continued efforts and support! We truly appreciate YOU!!

Courtney Hemphill and Steph Royden
2014 Arizona Hydrocephalus Association WALK Chairs
phoenixhawalk@gmail.com
Hawalk.kintera.org/Phoenix

Facebook page: 2014 Phoenix Hydrocephalus Association WALK

Twitter: @Phoenixhawalk

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Learn Fast Facts about NPH! August 29, 2014

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View our NPH fact sheet.

 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center 

 

A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner August 14, 2014

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The specialists at the Barrow Normal Pressure Hydrocephalus Center are deeply saddened about the death of our friend Dick Wagner. A world-famous rock n’ roller, composer, and author, Dick touched us on such a personal level.

After years of struggling with various symptoms associated with NPH, he was successfully treated at Barrow Neurological Institute by Joseph Zabramski, MD. Since that time he has relentlessly engaged in opportunities to raise awareness of this condition until he succumbed to health problems unrelated to NPH.

We would like to extend our deepest sympathy and prayers to his family and all of his many friends.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center

Protect Yourself from West Nile Virus July 30, 2014

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Maricopa County Department of Public Health recently announced the county’s first death of the season from West Nile Virus. The victim was an East Valley man with underlying health issues. West Nile Virus is spread through the bite of an infected mosquito.

Simple precautions to avoid mosquitos and the diseases they carry include:

  • Avoid outside activity between dusk and dawn, when mosquitoes are most active.
  • If you must be outdoors during this time, wear lightweight clothing that covers your arms and legs and use an insect repellent (follow the directions).
  • Make sure doors and windows have tight-fitting screens and remain closed.
  • Eliminate mosquito-breeding sites around the home by removing standing water in potted plants, containers, etc. Change the water in outdoor flowerpots, birdbaths, and pet bowls at least twice a week.
  • Properly maintain swimming pools and decorative water features.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center

One Man’s Journey to Find Treatment for NPH July 18, 2014

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Read about Ed Stall’s journey to find relief from his symptoms related to Normal Pressure Hydrocephalus (NPH).

Mr. Stall underwent surgical placement of a shunt device by Joseph Zabramski, MD, surgical director of the Barrow NPH Center. Read about Ed’s NPH treatment here.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org

Save the Date for the Next Hydrocephalus Association Walk June 26, 2014

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This year’s Annual Hydrocephalus Association Walk is being held on October 4, 2014 at Steel Indian School Park from 8:00am-12:00pm.

If you would like to volunteer in any way please contact me through this blog. No task is too small to be of great assistance!

Details about registration and the event itself can be found on the Hydrocephalus Association’s website.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center  

Muhammad Ali Parkinson Center Receives National Coverage June 13, 2014

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The current edition of AARP features a great story about the Muhammad Ali Parkinson Center at Barrow Neurological Institute. The Muhammad Ali Parkinson Center and Movement Disorders Clinic is a National Parkinson Foundation Center of Excellence and an outstanding resource for people with Parkinson’s disease and other movement disorders.

The center provides care and services to approximately 10,000 patients a year including those suffering from Normal Pressure Hydrocephalus. AARP has one of the largest circulations in the nation and the story will help promote the center’s services and programs. To read the story, visit:

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center

 

What Should You do with Those Leftovers? June 5, 2014

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If you didn’t get to participate in national Take Back Day, which gives you an opportunity to properly dispose of old and/or unused medications, opportunities are still available. Visit the Got Drugs? link on www.dea.gov  to find a collection site near you.

Arizona has a number of permanent drop boxes offering safe opportunities to dispose of medications (you can also check out the Arizona Prescription Drug Misuse and Abuse Initiative website for a list of drop box locations).

Medications that are thrown in the trash can be retrieved and sold. Medications that are flushed down the toilet can contaminate the water supply. Proper drug disposal can reduce access to drugs that can be a danger to our community.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center

 

Save the Date! May 30, 2014

Posted by mvarlan in Uncategorized.
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The date and location have been confirmed for this year’s Hydrocephalus Association Walk. Join us on October 4, 2014 at Steel Indian School Park from 8:00am-12:00pm.

If you would like to volunteer in any way please contact me through this blog. No task is too small to be of great assistance.

Details about registration and the event itself can be found at the Hydrocephalus Association.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center

 

Classic NPH Gait May 15, 2014

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The walking motion, or gait, of a person with Normal Pressure Hydrocephalus is a classic symptom of the disease.

Some characteristics of NPH gait include:

  • widespread steps
  • short steps
  • slow and shuffling steps
  • individuals may have trouble picking up their feet

Gait disturbance is often the first and most pronounced symptom of NPH. Watch a video provided by the Hydrocephalus Association demonstrating this characteristic motion.

Please submit any questions to this blog or directly to my email.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center
Margaret.bobrowitz@dignityhealth.org

 

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