Know Your NPH Facts! February 9, 2015Posted by mvarlan in Uncategorized.
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- Normal pressure hydrocephalus (NPH) usually affects people age 60 and over.
- An estimated 375,000 Americans suffer from NPH
- NPH can be difficult to diagnose because its symptoms may be confused with other disorders such as Alzheimer’s disease and Parkinson’s disease
- NPH is believed to cause up to 5 percent of all cases of dementia
- If diagnosed early, NPH can be effectively treated
If you know someone who may be suffering from NPH tell them to seek out an NPH specialist and schedule a screening.
What is NPH? January 23, 2015Posted by mvarlan in Uncategorized.
Normal Pressure Hydrocephalus, or NPH, is a type of hydrocephalus that affects the elderly population. Since it mimics the symptoms and signs of getting older and/or Parkinson’s and Alzheimer’s disease, it is often misdiagnosed. To better understand this condition, watch this video from the Hydrocephalus Association’s Website. Please post all questions on this blog.
Ebola Preparedness December 17, 2014Posted by mvarlan in Uncategorized.
We have all been following the developments of the Ebola outbreak and we want to let you know what Dignity Health is doing to prepare. Although there are currently no confirmed cases of Ebola in Arizona, we continue to hold those affected by this disease in our thoughts and prayers. According to the Centers for Disease Control and Prevention (CDC), the risk of Ebola becoming an epidemic in this country is very low. Nonetheless, we are taking the threat very seriously. To prepare for the unlikely event that an Ebola patient comes to our hospital, we want to let you know about the steps we are taking.
Mary Decker Mentorship Award Nominations – Hydrocephalus Association December 3, 2014Posted by mvarlan in Uncategorized.
Please nominate your favorite Neuroscience Nurse for the Mary Decker Mentorship Award! Celebrate his/her expertise and dedication to#hydrocephalus patients and passion for excellent care with this great honor!
Click here for details: http://bit.ly/15OMJS0
Programmable Shunts November 19, 2014Posted by mvarlan in Uncategorized.
Programmable shunt valves have been instrumental in improving success of treatment for Normal Pressure Hydrocephalus (NPH). Introduced approximately 15 years ago, this technology allows the NPH specialist to personalize the speed of cerebrospinal fluid (CSF) flow from the brain, which may differ from patient to patient.
This ability to fine tune the device to meet the needs of each patient reduces the risks of overdrainage/underdrainage. To understand more about the mechanics of this device click here.
Adult Hydrocephalus Clinical Research Network October 23, 2014Posted by mvarlan in Uncategorized.
Adult Hydrocephalus Clinical Research Network (AHCRN) is a collaboration of physicians to improve treatments and outcomes for adults with hydrocephalus. It is comprised of a group of neurosurgeons, neurologists, a neuropsychologist, philanthropists, businesses, and nonprofit experts who have joined forces to share data and to partner on investigations into improved treatment for the adult forms of hydrocephalus, including transitional patients who were diagnosed as children, those who acquire hydrocephalus as adults, and patients with normal pressure hydrocephalus. The Hydrocephalus Association (HA) has been instrumental in providing the startup funding and infrastructure support for the network.
2014 Hydrocephalus Association Walk – Another Huge Success! October 17, 2014Posted by mvarlan in Uncategorized.
What a great day we had for this event! We were joined by Barrow doctors and nurses including our NPH specialists Drs. Jiong Shi and Joseph Zabramski, as well as pediatric specialist Katie Klas, PNP, from Barrow Neurological Institute at Phoenix Children’s Hospital. A special thanks to the Phoenix Fire Department and Ronald McDonald for coming out.
More photos can be found on the HA Facebook page.
HA Walk this Saturday **Details Below** October 1, 2014Posted by mvarlan in Uncategorized.
ATTENTION ALL TEAM CAPTAINS AND WALKERS!
2014 PHOENIX HA WALK TIPS!
Team Captains – Please share this information with your team!
- The 2014 Hydrocephalus Association WALK is Saturday, OCTOBER 4th!
- Rain or Shine, we will WALK!
- The 2014 HA WALK will be held at Steele Indian School Park (Circle of Life area) at 300 East Indian School Road, Phoenix, Arizona 85012. You can enter the park on either Indian School Road or Central Avenue. There are parking lots and access to the Circle of Life area at either entry. We encourage all participants to take the light rail and get off on the Steele Park route stop (www.valleymetro.org/metrolightrail).
- Walker Registration/Check-In opens at 8:30 AM. All walkers are asked to check-in at Walker Registration/Check-In, especially if you have money to turn in or if you have raised $50 or more so you can obtain your T-shirt ticket.
- The route distance is 5-K or 3.1 miles (or whatever the distance for your site is) which should take approximately 1 hour & 20 minutes. The WALK will kick-off at 10:00 AM!
- Participants are welcome to run the route if they choose. However, please know this is NOT a sanctioned, or timed event.
Other activities at the WALK include:
- The exclusive VIP tent for the top fundraising team
- T-shirt design contest (begins at 9 AM)
- A visit by Ronald McDonald
- Music by name of DJ AVL (do I hear the “Cha-Cha Hustle” or the “Electric Slide?”)
- Our traditional raffle with dozens of prizes will be held again this year! (Can you say gift cards galore?!)
- A bake sale with baked goods will be available for purchase, including a cake WALK!
- Face painting
- Teams entering the T-Shirt Design contest should plan to arrive on site no later than 8:50 AM. If you are planning on entering the Team T-shirt Design Contest please sign up at the DJ’s booth. Listen for the DJ to issue a “Call to the Stage” as the team T-shirt Design Contest will begin promptly at 9 AM. When the call is made for the T-Shirt Design contest please make your way over to the stage with your team representative ready to “model” your T-shirt!!
- A group photo will be taken at 9:45 AM.
- The WALK route is accessible to strollers, wagons, and wheelchairs. SAFETY IS OUR FIRST AND FOREMOST CONCERN OF THE DAY!Please wear the appropriate protective gear. NO BICYCLES, SCOOTERS or RAZORS, PLEASE!
*To print your Online Donations Report:
- Access your HA WALK web page
- Go to “My HQ”
- Click on the “Reports” tab at the top of the page (Your donations list should show up at the bottom of the screen)
- Just above the list of donations, on the right side, is a “Printable” option; click “Printable”
- Print as you would any other document.
If you have difficulty printing your online donations report please contact the HA office at (888) 598-3789 Ext. 12.
NPH Education Continues at Barrow Neurological Institute September 26, 2014Posted by mvarlan in Uncategorized.
The Normal Pressure Hydrocephalus (NPH) Center at Barrow Neurological Institute offers continuing education conferences for our residents to expand knowledge about NPH and other cognitive and movement disorders.
The neurology residents attended an overview of NPH presented this month by Dr. Jiong Shi. Dr. Shi is the Medical Director of the Barrow NPH Center and highly respected for his work in this field. Keep in mind this was intended for an audience of medical professionals, so if you don’t understand some of the language used in the talk you can post your questions here.
Hydrocephalus Association Walk October 4, 2014 ** Details** August 30, 2014Posted by mvarlan in Uncategorized.
Our 2014 walk is approaching quickly and we are looking for more volunteers.
Click here to view Pre-Event Day Volunteer Opportunities.
No task is too small to make a difference.
Please see message from lead event facilitator below.
We are only a few days away from HYDROCEPHALUS AWARENESS MONTH!!!!
- We are looking specifically for Mesa, Gilbert, Chandler, Scottsdale and/or Tempe residents to share their hydrocephalus stories and be featured in local media! Email Mindy at firstname.lastname@example.org be highlighted!
- Raise money for you and your team with a percentage day fundraiser! All you have to do is just tell us the day and restaurant (Applebees, Manuel’s, California Pizza Kitchen, Oregano’s, Rubio’s, Chipotle, Pei Wei, Chompie’s, etc- your choice!) where you want to host your event. We’ll do ALL of the organizing/ planning!Just show up and dine with ALL ofyour family and friends and the amount raised will be credited towards you and your team!!!! The more patrons you bring to your percentage night, the more money you will raise! Can you say VIP access and more incentive prizes?! Let’s see which team can raise the most money and awareness in September!!!!!
- September is a great time to remind your family and friends about your personal reason to walk. It’s not too late to use an email/letter writing campaign to inform your family and friends that you are supporting the cause! Please let us know if you are interested in doing so and we will provide you with all of the support and resources you need to make this a success for you and/or your team! We encourage all teams to try a letter writing campaign in addition to posting their personal page links on social media.
- We are taking song requests for DJ AVL! Please send us your favorite songs you would like to hear while you are walking/socializing so we can be sure to have them available to play at the WALK. Please remember family friendly songs only.
Finally, THANK YOU ALL for your continued efforts and support! We truly appreciate YOU!!
Facebook page: 2014 Phoenix Hydrocephalus Association WALK