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The 5th Annual Phoenix Hydrocephalus Association WALK February 19, 2014

Posted by mvarlan in Uncategorized.
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Please join us for the 5th Annual Hydrocephalus Association Walk in the fall. The date and location will be posted on this blog once it is confirmed. Details about registration and the event itself are coming soon.

If you would like to volunteer the day of the event or in the planning stage please contact me or the Hydrocephalus Association directly @ http://hydroassoc.org/docs/2013WALK/HA_WALK_FAQ.pdf

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Normal Pressure Hydrocephalus Center

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It’s Good for the Heart February 12, 2014

Posted by mvarlan in Uncategorized.
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It’s Heart Failure Awareness Week–a time to remind everyone of the importance of taking good care of your heart. This advice is especially sage for patients with existing medical conditions such as NPH.

As we age our body works harder to maintain good health and prevent medical disorders. Learn what measures you can take to prevent heart failure and maintain good health. Understanding your prescribed medications and their side effects is crucial to living a long, healthy life.

Approximately 60 percent of heart failure patients are readmitted to a hospital because they do not take their medications as prescribed. Proper patient and caregiver education can help prevent early readmission by up to 25 percent. Learn more by visiting the American Association @ http://www.heart.org/HEARTORG/

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org
Office: (602) 406-7585

What Research is Being Done? February 3, 2014

Posted by mvarlan in Uncategorized.
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The National Institute of Neurological Disorders and Stroke (NINDS) and other institutes of the National Institutes of Health (NIH) conduct research related to hydrocephalus and support additional research through grants to major medical research institutions across the country. Much of this research focuses on finding better ways to prevent, treat, and ultimately cure disorders such as hydrocephalus. The NINDS also conducts and supports a wide range of studies that explore the complex mechanisms of normal and abnormal brain development.

The Hydrocephalus Clinical Research Network (HCRN, www.hcrn.org) is a multi-center collaborative research effort that was borne out of the first NIH workshop on hydrocephalus. NINDS supported the work of HCRN through the Challenge Grant process to advance their studies. HCRN consists of seven pediatric centers that pool their hydrocephalus patient population to more rapidly study the potential for improved treatments. HCRN conducts multiple, simultaneous studies at all of its centers and maintains a substantial registry of patients and procedures.

For more information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke or to find out how you can help, contact the Institute’s Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov

Hydrocephalus Association
4340 East West Highway
Suite 905
Bethesda, MD   20814
info@hydroassoc.org
http://www.hydroassoc.org
Tel: 301-202-3811

888-598-3789
Fax: 301-202-3813

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow NPH Center
margaret.bobrowitz@dignityhealth.org